Emergency Signs
Recognize ADPKD emergency signs: when to seek urgent medical care for aneurisma rupture, infección de quiste, severe bleeding, anuria, and other life-threatening situations.
⚠ Emergency Safety Notice
If you are experiencing any of the emergency signs listed below, busque atención médica inmediata or call your local emergency number (e.g. 120 in China, 911 in the US, 999/112 in the UK/Europe). Do not wait or attempt to manage these situations on your own. Early tratamiento can be life-saving.
When to Call Emergency Services Immediately
Call emergency services right away if you experience any of the following:
- Sudden severe dolor de cabeza — possibly a ruptured aneurisma intracraneal; often described as the "worst dolor de cabeza of your life."
- Severe flank or dolor de espalda with fiebre — possible infección de quiste; may progress to sepsis if untreated.
- Gross hematuria with blood clots — significant sangrado de quiste or rupture requiring evaluation.
- Anuria or severe oliguria — passing little or no orina; may indicate acute riñón injury or obstruction.
- Difficulty breathing — may signal fluid overload, pulmonary edema, or a cardiovascular event.
- Confusion or altered consciousness — may indicate severe hipertensión, electrolyte disturbance, or intracranial bleeding.
- Severe vómito or diarrhea with dehydration — can trigger acute riñón injury, especially in reduced función renal.
- Sudden vision changes — may indicate severe hipertensión or a vascular event.
Cyst Infection
⚠ Warning Signs
Fever, dolor en el flanco, and chills — needs prompt medical evaluation, possible hospitalization.
Cyst infection is common in ADPKD. Delayed tratamiento can lead to sepsis. Prompt medical evaluation is essential; tratamiento typically requires antibiotics, and sometimes drainage. If you have fiebre with flank or dolor de espalda, contact your doctor promptly or go to the emergency department.
Cyst Bleeding / Rupture
⚠ Warning Signs
Gross hematuria (visible blood in orina) and sudden severe dolor en el flanco — usually self-limited but needs evaluation.
Most sangrado de quiste resolves on its own, but medical evaluation is needed to rule out other causes (such as stones or tumors). Heavy bleeding may cause hemoglobina to drop and require hospital observation. Seek medical care promptly if you see visible blood in your orina or experience sudden severe dolor en el flanco.
Intracranial Aneurysm Rupture
⚠ Critical Emergency
Sudden "worst dolor de cabeza of your life," neck stiffness, náusea/vómito, altered consciousness — call emergency services immediately.
Approximately 8–10% of ADPKD pacientes have aneurisma intracraneals; the rate is higher in those with a antecedentes familiares of aneurisma. A ruptured aneurisma is a life-threatening emergency — call emergency services immediately. Patients with a antecedentes familiares of aneurisma should discuss tamizaje (MRA) with their doctor.
Acute Kidney Injury
⚠ Warning Signs
Sudden creatinina rise, reduced orina output, dehydration, especially after contrast agents or NSAIDs — seek prompt medical care.
Acute riñón injury (AKI) may result from obstruction (e.g. stones), severe infection, dehydration, or nefrotóxico medicamentos (such as NSAIDs or contrast agents). Seek prompt medical care — delayed tratamiento can cause irreversible riñón damage. Always tell healthcare providers that you have ADPKD before any procedure involving contrast dye.
Severe Hypertension
⚠ Hypertensive Emergency
Blood pressure ≥ 180/120 mmHg with síntomas (dolor de cabeza, chest pain, shortness of breath, vision changes, confusion) — this is a hypertensive emergency.
A presión arterial of 180/120 mmHg or higher accompanied by síntomas is a hypertensive emergency requiring immediate medical attention. If your presión arterial is this high but you have no síntomas, contact your doctor promptly — this is a hypertensive urgencia that still needs urgent evaluation.
What to Bring to the Emergency Department
If you need to go to the emergency department, bring the following if available:
- Recent lab reports — latest función renal (creatinina, eGFR), blood counts, electrolytes, urinalysis.
- Medication list — all current medicamentos, doses, and schedules, including tolvaptán, ACEI/ARB, and any supplements.
- Medical history — ADPKD diagnóstico, known aneurismas, prior surgeries, allergies, and antecedentes familiares.
- Imaging reports — recent riñón ecografía, CT, or MRI reports, and any MRA results if you have been screened for aneurismas.
What NOT to Do
- Do not self-medicate — never take new medicamentos, especially NSAIDs or herbal remedies, without medical advice during an emergency.
- Do not stop prescribed medicamentos without medical direction — stopping presión arterial medicamentos or tolvaptán abruptly can be dangerous; follow your doctor's guidance.
- Do not force fluids if oliguric — if you are passing little or no orina, drinking large amounts of fluid can cause dangerous fluid overload; follow medical advice.
References
- KDIGO 2025 Clinical Practice Guideline on the Evaluation and Management of Autosomal Dominant Polyquisteic Kidney Disease (ADPKD) — KDIGO. Kidney International, 2025. DOI: 10.1016/j.kint.2024.07.010. View source
- KDIGO Clinical Practice Guideline for Acute Kidney Injury — KDIGO. Kidney International Supplements, 2012. View source
Limitations: This content Individual circumstances vary — always consulte a su nefrólogo.